Physical therapy for hypermobility – The Ehlers-Danlos Support UK (2022)

Rosemary Keer (retired), previously Lead Hypermobility Physiotherapist, The Hypermobility Unit, Hospital of St John & St Elizabeth & Dr Jane Simmonds, Hypermobility Lead, The Wellington Hospital, London and Senior Teaching Fellow, UCL Great Ormond Street Institute of Child Health

Principles of management

There have been very few treatment intervention studies undertaken to date. Research by Barton and Bird reported improvements in joint stability and body pain with strengthening and stability exercises. Likewise, Kerr et al reported a good response to a progressive six-week exercise programme in a retrospective study of 39 children with joint hypermobility syndrome (JHS). Furthermore, Ferrell et al reported significant improvements in proprioception and pain with an eight-week programme of closed chain and proprioception exercises for individuals with hypermobile Ehlers-Danlos syndrome (hEDS) / JHS aged between 16 and 49 years. Other authors have reported improvements with graduated exercise programmes combined with education, behavioural and lifestyle advice.

Because of the ubiquitous nature of collagen, hEDS will present with a variety of different signs and symptoms. Therefore current best practice management of hEDS is essentially an individualised problem-solving approach. A multidisciplinary approach to rehabilitation is recommended, including occupational therapists, podiatrists, physical therapists, osteopaths, sports therapists, nurses and psychologists depending on the individual’s needs. Physical education teachers, sports coaches, school nurses, music and dance and classroom teachers all need to be involved in the wider management plan, especially where children and adolescents are concerned.

Principles of management include:

(Video) Strengthen Your Hypermobile Core - A Home Exercise Approach for EDS, HSD, and Hypermobility

  • Treating the treatable, for example acute soft tissue lesions and injuries.
  • Relieving pain where possible through the use of soft tissue work, gentle mobilisations, electrotherapy and support of joints and tissues.
  • Education and behaviour modification to enable individuals to manage the condition with minimal reliance on medical input or medication.
  • Liaison with family and other associated professionals where appropriate, e.g. occupational health, school teachers, school nurses, occupational therapists etc.
  • Improving the endurance and strength capacity of the postural support and joint-stabilising muscles.
  • Improving balance and coordination.
  • Improving stamina and general fitness.
  • Re-educating posture and gait to avoid or correct abnormalities in biomechanics.
  • Facilitating a return to normal activities and functioning and promoting an active lifestyle.

These aims work together to ensure that the individual has improved functional capacity, spatial awareness, joint stability and control, which facilitates self-management, independence with a minimum of external support.

Pain relief

It is important for both individual sufferers and the family of sufferers to understand that the pain they are experiencing is due to the hypermobility and associated musculoskeletal insufficiencies and not to any other pathology such as an inflammatory arthritic condition. It is then easier to understand why a rehabilitation programme is the treatment of choice. Individuals can be reassured that the pain will ease, but only when the muscles are strong and fit and are protecting the joints more fully. It is often found that the pain is the last thing to improve and only does so slowly, and this should be emphasized at the start of the programme. It is important to realize that the pain does not signify damage or primary inflammatory arthritis, but indicates soft tissue sprain- and strain-type injury due to poor control of the joints. This is usually benign and self-limiting if managed well.

As an adjunct to exercise, other methods of pain relief include hot packs or cold packs on specific joints. Transcutaneous electrical nerve stimulation (TENS) machines may also have a role to play in this aspect. Frequently hypermobile individuals will present with a mixture of hypomobile (stiff) and hypermobile segments or joints. Manual therapy including mobilisations of stiff hypermobile joints can be helpful, as can soft tissue massage, trigger point work and myofascial release to alleviate pain associated with muscle spasm. Relaxation and visualization techniques can help the individual to manage pain and can be very useful at night-time if they have difficulty sleeping due to pain and discomfort.

Pacing and monitoring of activity is an extremely important part of pain management. It is often the case that individuals will report pain after activities such as vacuuming the house or sitting for prolonged periods at work. This may result in an increase in pain over the next day and not feeling well enough to go to work, or feeling the need to rest. This settles and the individual recovers enough to be able to do many activities again with the same result and the cycle continues. This causes constant ‘peaks and troughs’ of symptoms and causes a major disruption to life. The idea of pacing is to stop this rise and fall of symptoms by levelling out activities and gradually building them up again. The key is to balance out the activities so the amount done on each day is not enough to cause a flare-up. It is better to vary the activities, trying not to spend too long in any one position or activity. If necessary an activity can be repeated a few times a day rather than being done all in one go. The amount of time spent on each activity is then gradually increased weekly until they are able to achieve functional activity goals and resume normal life. For further help with pacing see

Posture and motor control

Suboptimal posture, both static and dynamic, is a common clinical finding in hEDS individuals and recent research has suggested the trunk is most affected. An individually tailored posture re-education programme showed good improvement in pain and quality of life.

Improving trunk stability is often the most appropriate starting point for a rehabilitation programme because efficient trunk stability is required for effective peripheral joint control. Patients with recurrent low back pain have been shown to have an altered postural strategy whereby activation of the deep postural stability muscles which support the spine during movement are delayed and may produce pain as tissues are overloaded through lack of muscular support. This change in muscle activation can produce functional changes in the representation of affected muscles on the somatosensory cortex in the brain. But because the brain is ‘plastic’ these changes, associated with pain, can be reversed by motor-skill training.

Motor-skill training is an important part of the rehabilitation process and Boudreau and colleagues suggest several components to maximise success:

(Video) Hypermobile Ehlers-Danlos Syndrome (hEDS)

  • Exercises should target a specific component of movement which requires greater skill and precision.
  • Motor-skill training should be pain-free. Pain rapidly alters the excitability of the motor cortex and contributes to protective strategies and so hinders learning.
  • Rehabilitation exercises should be goal-orientated or ‘cognitive’ to enhance brain changes.
  • Quality is preferable to quantity to prevent fatigue and pain interfering with improvements in task performance.

Research has demonstrated that specific, isolated, low level, skilled stabilisation training is preferable to non-isolated functional exercise and can restore the timing of activation of postural muscles to near-normal levels. These changes can occur relatively quickly with instruction and practice, can lead to brain pathway reorganisation and motor learning and be transferred to functional activities.

Muscle strengthening

Individuals often present to clinic in a physically deconditioned state resulting from reduced physical activity due to longstanding pain from recurrent injury or postural misuse. Muscle weakness is a common clinical finding, particularly in the presence of pain, and has been found to occur in the knee extensors and to a lesser degree in the knee flexors of adults with hEDS. In addition, there is some evidence to suggest that hypermobiles need to work harder and use a different strategy to stabilise the knee in quiet standing and with more challenging tasks there is less use of the gluteal muscles.

Joint stability, muscle strength and improving dynamic muscle control to supplement the ligamentous insufficiency should help to support and minimize trauma to joints. It can be useful, especially if the individual is experiencing significant pain, to start with static exercises in the hypermobile range before progressing to dynamic work and then on to resisted work. The exercises may progress from non-weightbearing to weightbearing work and hydrotherapy can be a useful adjunct. Hydrotherapy can also be useful if weightbearing and land based exercises prove difficult or too painful. The buoyancy of the water helps to support the body and the warm water helps to relax muscles making movement easier.

External support

As a rule the use of aids and supports is discouraged as it can exacerbate muscle weakness and promote dependency. However, there is a place for the judicious use of support in certain circumstances. During the acute phase of an injury support in the form of a brace or tape can be helpful to support a vulnerable joint to allow movement and also to help facilitate proprioception, healing and postural control. Aids and supports can be used to allow the wearer to partake in a specific activity such as sport, gardening, or playing a musical instrument, which would not be possible without the support. Equally prudent use of devices such as pen grips can be a good adjunct to a hand-muscle strengthening programme, as they reduce the force required to sustain the gripping of a pen, therefore reducing the pain and fatigue experienced in fingers and wrists during school work for example.

Gait rehabilitation and functional rehabilitation

A combination of hypermobile joints, reduced proprioception, altered motor control, weak muscles and reduced stamina can profoundly affect gait. Individuals with hEDS often adapt to their hypermobility by altering the mechanics of how they function. This can lead to overloading in some areas of the body with increased pain, pain in other locations and fatigue. To correct this, the causes of the abnormalities need to be identified and worked on separately, alongside the hypermobile individual recognizing the abnormalities and trying to correct them. The use of video recording and a mirror can aid this and give the individual helpful visual feedback as they work on improving their gait and posture. It is important to work on specific functional activities and to develop with the individual energy-saving, biomechanically correct, safe and pain-free ways of approaching these actions. Practising these movements can be included in their rehabilitation programme and can be as easy as step-ups and step-downs on a stair and/or repeated sitting to standing from a chair.

Individuals frequently present with pronated, flat feet on weightbearing as a result of their hypermobility and this can contribute to lower limb symptoms and an altered gait pattern. This can be improved through exercise and by choosing sensible footwear which supports the foot and has some shock-absorbing qualities. The characteristics of the ideal shoe are seen in the more solid types of trainer with a strong heel counter, robust fastenings to support the midfoot and a cushioned sole. If these measures are insufficient the hypermobile foot may respond well to functional insoles or orthoses, either over the counter or bespoke. These may take the form of a heel cup or arch support that will support the position of the hindfoot or the medial arch respectively, helping to correct the foot position. It can be argued that this may be encouraging weaker foot muscles, but in practice, the benefits of correcting the biomechanics of the foot (through exercise and/or insoles) can have a positive effect upon the whole gait pattern as it reduces the abnormal forces throughout the foot and the other joints of the kinetic chain, therefore reducing the pain.

Balance and proprioception

Given that proprioception and balance deficits are common in hEDS, techniques related to these problems should be incorporated into fitness and rehabilitation programmes. Landmark work by Proske and Gandevia has emphasised the importance of skin in proprioception and kinaesthetic sense. Because of the skin laxity, we recommend enhancing sensory input via the skin by the use of ‘hands on’ movement facilitation by therapists, the wearing of tight fitting clothing and neoprene gloves and the use of tape during specific exercise or functional rehabilitation sessions. ‘Rhythmical stabilisations’ are a useful method to improve postural stability, both globally and specifically. Balance and proprioception as well as pain, muscle strength and quality of life were significantly improved by an eight week programme of closed chain exercise (weightbearing) combined with practice on a balance board. These simple exercises include squats, plié, bridging, four point kneeling, standing on one leg and progressing on to more dynamic balance activities using a balance (wobble) board, foam roller and Swiss ball to provide a further challenge. Even more striking than the improvement in symptoms, was the finding that the reflex associated with the quadriceps muscle, found to be absent or diminished in 50% of hEDS individuals prior to the programme, was now elicited in all participants following the programme. This is thought to be due to improved motor neurone activation at a spinal level and suggests plasticity in the spinal circuitry.

Psychological support

In some cases where pain and loss of independent function are seriously impacting on quality of life it can be helpful to enlist the help of a clinical psychologist. The reason for this is that pain can change based on what we think, how we feel as well as what we do. There are numerous psychological techniques, which can help individuals to change their relationship with pain helping them to cope better. These include learning effective pain management strategies, learning strategies to reduce stress, anxiety and worry, improving sleep as well as relaxation techniques and mindfulness. Many find this support invaluable and are able to change many unhelpful coping strategies into helpful ones and are then able to leave behind the ‘chronic pain cycle’ that may have developed in the preceding phase. There is useful information on the internet to help individuals work on some of these strategies themselves at:

(Video) 20 Minute Pilates Workout for Hypermobility and Ehlers Danlos Syndrome

General fitness

Individuals with hEDS often become more sedentary due to their pain and muscular weakness ensues, which develops over time resulting in the individual becoming generally de-conditioned and lacking in general fitness. It is therefore important to incorporate some aerobic fitness work into the rehabilitation programme to improve cardiovascular health and improve energy and stamina. Care needs to be taken early on when there is still suboptimal muscle strength to ensure that the fitness aspect of the programme is of low impact to the joints and does not increase symptoms or cause a flare-up. This can happen if the programme is progressed too fast or with too much vigour. Aquatic graded exercises, swimming and deep water running are desirable methods of exercise as there is generally less stress on the joints.

It is preferable that a normal swimming pool is used for ongoing management, as hydrotherapy pools are too hot for distance swimming. Tai Chi and Pilates are also recommended as they facilitate balance and control. Bicycling can be good for aerobic work and again does not over-stress the joints. Nordic pole walking can be particularly effective as it is a functional activity. It is hypothesised that the closed chain nature of the activity assists proprioceptive feedback and engages the trunk sling muscles facilitating trunk (core) stability. The aim is to encourage a lifelong commitment to exercise and maintenance of good general fitness, through normal activities and a return to sport.

Joint hypermobility is a relatively common phenomenon which may be an asset or may predispose to a range of clinical problems. Because of the ubiquitous nature of collagen, hEDS may present in a variety of clinical presentations. Positive recognition and avoidance of unnecessary investigations and drug therapy are among the most important interventions. Most children are well managed with simple advice and reassurance, while adults frequently require a more structured rehabilitation programme. Modification of activities and behaviour may be required to redress the balance between healthy physical activities and high-impact physical pursuits. If untreated or undiagnosed hEDS may result in the development of a ‘chronic pain cycle’ and a high level of disability. This will require an intensive rehabilitation programme to manage the symptoms effectively and improve functional capacity. It is vital that individuals with hEDS and their families are clear in their understanding of the condition. It is also important to stress that a self-management-led programme with support from health, sport and exercise professionals is the most appropriate long-term treatment approach. The future will no doubt yield more appropriate assessment tools and perhaps genetic analyses for identifying individuals at risk, thus allowing earlier implementation of preventive strategies.

This article has provided a critical review of the pathogenesis, epidemiology and clinical assessment and management strategies associated with hEDS. There is evidence to suggest that participation in sport, dance and performance is a risk factor for some individuals and also a suggestion that healing times and rehabilitation may be slower as a result of altered proprioception and connective tissue synthesis. Clearly exercise and participation in physical activity is an important management strategy and has a health promoting role, therefore it is imperative that professionals who work in this domain are aware of the condition, can assist prevention and work collaboratively within a multidisciplinary team to help manage children and adults with hEDS and their associated problems.

(Video) Actify Physiotherapy and Wellness - Dr. Marcia Perretto


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More information on EDSInformation sheets, management advice, videos and general advice


Can physical therapy help Ehlers-Danlos? ›

Can Physical Therapy Help Ehlers-Danlos? Yes, physical therapy can help Ehlers-Danlos. By helping strengthen different muscles and teaching new ways to move, physical therapy allows Ehlers-Danlos patients to find new paths to symptom relief.

What are the best exercises for EDS? ›

Suitable exercises

Many patients with EDS can benefit from low-impact exercises such as Pilates and Tai Chi, which help build core strength. Yoga can also be beneficial but poses must be done carefully as there is the risk of overextending joints in some positions. Swimming can be helpful as well for some EDS patients.

Can physical therapy help hypermobility? ›

Hypermobility can be acquired (e.g, through training for ballet, gymnastics, etc.) or part of a medical syndrome/diagnosis. Physical therapy can help with joint hypermobility REGARDLESS of what is causing it.

Is hypermobility Ehlers-Danlos syndrome a disability? ›

The answer is that Ehlers-Danlos Syndrome (EDS) can be a disabling condition, depending on how it presents. EDS is a genetic disorder affecting connective tissues and causing an array of serious physical problems, ranging from joint pain to cardiovascular issues.

Is massage good for Ehlers-Danlos syndrome? ›

Massage therapy may help ease symptoms, such as tight muscles and pain, often experienced by patients with Ehlers-Danlos syndrome.

What is the best treatment for hypermobility? ›

Physiotherapy. The main treatment for HSD or hEDS is improving muscle strength and fitness, so your joints are better protected. Physical therapy can reduce pain, improve your strength, fitness and balance which will help reduce the risk of dislocations. Hydrotherapy can also help strengthen your joints.

What exercises not to do with hypermobility? ›

Hypermobile people have to learn to limit their range of motion in these joints — not expand it. Thus, people with hypermobile joints should avoid stretching exercises that work their elbow, knee and wrist joints. They should instead focus on gaining joint awareness.

Should you stretch if you are hypermobile? ›

Stretching can provide a good way to create body awareness and is an activity that is rich in sensory information, which is always good for the hypermobile, allowing you better control over joints. Anecdotally, it is also a very good way to change the subjective feeling of constant tightness.

Can you build muscle with Ehlers Danlos? ›

Conclusion: in this small pilot study, heavy resistance training was both feasible and effective in classic Ehlers Danlos patients, and the results indicated that both tendon and skeletal muscle properties can be improved also in this patient group when they are subjected to resistance training.

Is massage good for hypermobility? ›

Manual therapy including mobilisations of stiff hypermobile joints can be helpful, as can soft tissue massage, trigger point work and myofascial release to alleviate pain associated with muscle spasm.

What is the life expectancy of someone with EDS? ›

It is often associated with a shortened lifespan. Among affected people diagnosed as the result of a complication, 25% have experienced a significant medical complication by age 20 and more than 80% by age 40. The median life expectancy for people affected by vascular EDS is 48 years.”

How serious is hypermobility? ›

In most people, hypermobility doesn't cause any pain or medical issues. However, for some people, hypermobility causes joint pain, joint and ligament injuries, tiredness (fatigue), bowel issues and other symptoms. Joint hypermobility syndrome is most common in children and young people.

Can I claim PIP for hypermobility syndrome? ›

If your hypermobility significantly affects your ability to walk or carry out daily living tasks, you might be eligible for Personal Independence Payments (or PIP).

Does Ehlers-Danlos affect memory? ›

While “brain fog” is not one of the most common symptoms of Ehlers-Danlos syndrome (EDS), many patients report experiencing this form of cognitive dysfunction, which can affect their ability to focus, learn, retain information, and maintain employment.

What is the difference between hypermobility syndrome and Ehlers-Danlos? ›

The essential difference between HSD and hEDS lies in the stricter criteria for hEDS compared to the HSD. If someone was diagnosed with hEDS before the 2017 criteria, there's no cause to seek a new diagnosis unless they decide to participate in new research or need to be reassessed for some other reason.

Does EDS affect fascia? ›

Because fascia is everywhere, and because EDS and hypermobility sufferers have genetic collagen problems, it can mean that those with the condition can feel it affects anywhere in the body – from the heart and lungs to digestion, muscles and joints.

Can people with Ehlers Danlos have surgery? ›

Orthopaedic surgery in the Ehlers–Danlos syndromes is controversial and how much of a role it should play in their management is unclear. Conservative treatment such as physiotherapy is preferable, but if this fails then for some people joint stabilisation and nerve decompression procedures can provide relief.

Can you get EDS later in life? ›

EDS is something you are born with but symptoms may not manifest themselves until later in life. It is not uncommon for a genetic condition to first become apparent during puberty, alternatively symptoms can be triggered by a trauma, such as a virus, many years down the line.

Does hypermobility syndrome get worse with age? ›

In many cases, the joints become stiffer with age, although joint hypermobility and its associated symptoms can continue into adult life. It's not known how many people have JHS in the UK, as the condition is often not recognised or is misdiagnosed.

What mimics Ehlers Danlos Syndrome? ›

Tnxb/ mice showed progressive skin hyperextensibility, similar to individuals with Ehlers–Danlos syndrome. Biomechanical testing confirmed increased deformability and reduced tensile strength of their skin.

Why does hypermobility cause anxiety? ›

The experience of anxiety is greater and more frequent in people living with this condition than in the general population. Dr Jessica Eccles can explain this increase in anxiety by the fact that people with hypermobility are more sensitive to bodily feelings, such as changes in sensations like heart rate.

Is walking good for hypermobility? ›

Walking with hypermobility is often something that we pay little attention to. When it's easy for our bodies to do, we take for granted how natural it comes to most of us. But, when it comes to hypermobility, the way that we walk is extremely important.

Is a chiropractor good for hypermobility? ›

Chiropractic may be a great way to manage the problems associated with hypermobility, however the increased movement in the affected joints must be taken into consideration. Most of the time, Chiropractic involves finding and adjusting joints that aren't moving properly or are painful.

How do hypermobile people sit? ›

The muscles tightness develops because of the postures the hypermobile infant adopts when sitting on the floor. They often sit with the legs wide apart, sometimes with a flexed spine. This leads to tightness in the muscles that cross over the back and sides of the hip and knee joints.

How do you build muscle with hypermobility? ›

How To Do Strength Training When You Have Hypermobility6 min read
  1. Strengthening is a must.
  2. Strength train three days a week.
  3. Always make strengthening your focus.
  4. Good stability and technique is paramount.
  5. Move the weight around your body, not the opposite.
  6. Don't lift more than you can control.
Jun 4, 2021

How do you exercise with hypermobile? ›

5 Tips for Working Out with Hypermobility Syndrome
  1. Dynamically Warm-up. Warming up the body in the right way is crucial for gaining the proper results of the workout. ...
  2. Limit Your Range of Motion. ...
  3. Consider Isometric Exercises First. ...
  4. Strengthen Your Stabilizing Muscles. ...
  5. Progress Slowly.

Is hypermobility hereditary? ›

Hypermobile EDS is inherited in an autosomal dominant manner. Most individuals diagnosed with the syndrome have an affected parent. The proportion of cases caused by a de novo pathogenic variant is unknown. Each child of an individual with hEDS has a 50% chance of inheriting the disorder.

Can you donate blood if you have Ehlers Danlos Syndrome? ›

Certain medications may delay your ability to donate blood.
Medical Conditions Affecting Donation.
Medical ConditionsEligibility
Ehlers Danlos SyndromeAcceptable
EhrlichiosisAccept if asymptomatic and treatment completed
135 more rows

Does EDS cause vitamin D deficiency? ›

Individuals with EDS-HT and dysautonomia are at risk for micronutrient deficiencies, due to limitations in dietary intake and bacterial overgrowth and may require either oral or parenteral supplementation. EDS-HT patients are known to have low vitamin D serum levels [80, 81].

Is chiropractic good for EDS? ›

Conclusion: Chiropractic care helped relieve some of the more common musculoskeletal symptoms in this patient and may prove of value in other EDS patients. Doctors of chiropractic who are aware of EDS and its associated symptoms may be able to offer significant relief in selected EDS cases.

How do you treat Ehlers Danlos pain? ›

Management can focus on treating the cause (like joints coming out of position) and lowering the sensation of pain. Methods of pain management in EDS include physiotherapy, medication, cushions, compressive clothes, and braces, as well as behavioral adaptation.

Does EDS get progressively worse? ›

Many of the problems associated with EDS are progressive, meaning that they get worse over time. Kyphoscoliosis EDS (kyphosis and scoliosis) is a form of Ehlers-Danlos Syndrome that is noted for severe, progressive curvature of the spine. It worsens over time and may affect breathing by restricting lung expansion.

Is hypermobile EDS fatal? ›

Patients with the classical and hypermobility forms of Ehlers-Danlos syndrome have a normal life expectancy.

Is hypermobile EDS rare? ›

There are 13 types of EDS, most of which are very rare. Hypermobile EDS (hEDS) is the most common type.

How do you build muscle with hypermobility? ›

How To Do Strength Training When You Have Hypermobility6 min read
  1. Strengthening is a must.
  2. Strength train three days a week.
  3. Always make strengthening your focus.
  4. Good stability and technique is paramount.
  5. Move the weight around your body, not the opposite.
  6. Don't lift more than you can control.
Jun 4, 2021

Is yoga good for Ehlers Danlos? ›

Yoga is often contraindicated for those with EDS as, without sound connective tissue, the postures and practices can destroy the joints.

Is chiropractic good for EDS? ›

Conclusion: Chiropractic care helped relieve some of the more common musculoskeletal symptoms in this patient and may prove of value in other EDS patients. Doctors of chiropractic who are aware of EDS and its associated symptoms may be able to offer significant relief in selected EDS cases.

Can taking collagen help with EDS? ›

Bottom Line: No established research or clinical experience has proven that collagen supplementation is helpful for persons with EDS! Theoretically, a diet adequate in glycine, proline, lysine, and vitamin C (or supplementation) would support collagen biosynthesis.

Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue. Find out about the symptoms, causes and treatments.

Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue.. There are several types of EDS that may share some symptoms.. EDS can affect people in different ways.. Sometimes the faulty gene is not inherited, but occurs in the person for the first time.. There are 13 types of EDS, most of which are very rare.. Vascular EDS (vEDS) is a rare type of EDS and is often considered to be the most serious.. Joint hypermobility, for example, is relatively common, affecting around 1 in 30 people.. If there's a possibility you may have 1 of the rare types of EDS, your GP can refer you to your local genetics service for an assessment.. Advice will depend on which type of EDS you have and how it affects you:. EDS can be inherited, but in some cases it occurs by chance in someone without a family history of the condition.. For example, the children of someone with hypermobile EDS cannot inherit vascular EDS.. The following websites provide more information, advice and support for people with EDS and their families:

The Hypermobility Type is the most common form of Ehlers Danlos Syndrome Diagnosis Criteria. It is characterized by loose, hypermobile joints and chronic joint pain

It is critical to use the current BRIGHTON DIAGNOSTIC CRITERIA for diagnosing Ehlers-Danlos Syndrome – Hypermobility Type (HEDS)/ formerly EDS III, aka Joint Hypermobility Syndrome (JHS/BJHS), Hypermobility Syndrome (HMS).. The Beighton Score is a diagnostic tool and only PART of the overall diagnostic criteria for Ehlers-Danlos Syndrome – Hypermobility Type (HEDS)/ formerly EDS III (aka HMS, JHS, BJHS).. View a video Demonstration of the Beighton Test and scoring.. Joint hypermobility in Classical Type EDS is general, affecting both large and small joints.. The Vascular Type of EDS is the most serious form of Ehlers-Danlos Syndrome.. Nothing on this website should be construed as medical advice or be used as a substitute for professional medical care or advice.. Pradeep Chopra, MD “EDS Pain Management – Connecting the DOTS… part 3”

Hypermobility spectrum disorders include all people with what used to be called joint hypermobility syndrome, and before that benign joint hypermobility syndrome.

In joint hypermobility, the joints are more than usually flexible (sometimes called being 'double-jointed') and this is linked to joint and muscle pain which typically relates to exercise.. It is not known why some children with 'double-jointedness' have painful muscles whilst others do not.. Growing pains are nevertheless more common in active children and in children with hypermobile joints.. Joint hypermobility and HSDs are very common in children of school age.. However, for most of these children, there is no associated pain.. The main symptoms of HSDs are joint hypermobility, with muscle and joint pains after exercise, and tiredness.. HSDs not only lead to pain where there is no injury but, importantly, also make people more prone to injury.. Careful support and management are therefore needed to find a balance between increasing muscle strength, and risking injury.. The muscle symptoms of HSDs are most commonly felt in the legs.. Other conditions which need to be ruled out if your child has joint and muscle pains are:. Children with a possible HSD are usually seen by a specialist, who will examine the child and talk with them about their activities, including hobbies, physical activity and sleep.. However in severe cases, or where exercise and support are not helping, it is important to go back to your doctor to ask for help again.. Tiredness is common in young people with an HSD.. Before doing so it is important to make sure there is no injury, particularly if your child's pain seems worse.. These tend to be the more severely affected children, some of whom may have EDS, hypermobility type (EDS-HT).

Ehlers Danlos syndrome classic type (formerly Types I–III), which is characterized by joint hypermobility syndrome die and medications to avoid with ehlers danlos syndrome

“Ehlers-Danlos Syndrome is a rare disorder, comprising a group of related inherited disorders of connective tissue, resulting from underlying abnormalities in the synthesis and metabolism of collagen.. The novel aspect of this proposal is based on: (i) increasing scientific evidence that nutrition may be a major factor in the pathogenesis of many disorders once thought to result from defective genes alone; (ii) the recognition that many of the symptoms associated with Ehlers–Danlos syndrome are also characteristic of nutritional deficiencies; (iii) the synergistic action within the body of appropriate combinations of nutritional supplements in promoting normal tissue function.. The novel aspect of this proposal is based on three principles: (i) the increasing scientific evidence that nutrition may be a major factor in the pathogenesis of many disorders once thought to result from the effects of defective genes alone; (ii) the recognition that many symptoms associated with Ehlers–Danlos syndrome are also characteristic of nutritional deficiencies; and (iii) the synergistic action within the body of appropriate combinations of nutritional supplements in promoting normal tissue function.. A wide variety of essential nutrients are required to maintain normal functioning of the body.. This has resulted from the recognition of the similarity of the symptoms of Alzheimer’s disease and those resulting from vitamin B deficiency.. A significant improvement in Alzheimer’s disease symptoms has recently been reported, via administration of a combination of B vitamins and antioxidant vitamin supplements over a period of approximately six months, based on increased levels of plasma homocysteine in Alzheimer’s disease patients [5].. Methyl sulphonyl methane (MSM) and silica is a combination supplement required by the body for the formation of bone, and collagen in connective tissue (cartilage, tendons, ligaments), and for healthy skin, hair and nails.. A dose equivalent to 80 mg/day of pycnogenol is proposed.. Coenzyme Q10 also inhibits the development of periodontal disease [13].. A dose equivalent to 100 mg/ day of coenzyme Q10 is proposed.c-Linolenic acidis an essential x-6 polyunsaturated fatty acid that is converted within the body into prostaglandins, which are important in normal immune function.. Calcium is the most abundant mineral in the human body, and is responsible for maintaining healthy bones and teeth and inhibiting the development of osteoporosis.. In conclusion, the combination of nutritional supplements proposed above is designed to counter the symptoms associated with classic type (I–III) Ehlers–Danlos syndrome, namely skin and vascular associated problems, musculo-skeletal problems, cardiac mitral valve prolapse and periodontal disease.. Am J Med Genet 1998;77: 31–7.


1. Ehlers Danlos Syndrome and the Potential For Pilates-Based Physical Therapy and Training
(Finding Genius Podcast)
2. Treatment and Support - What Should we be Offered? | Ehlers-Danlos Syndrome Awareness Month 2021
(Jenny Cole)
3. Pilates for Ehlers-Danlos Syndrome, POTS & HyperMobility
(Kelly Roberts Wellness)
4. Physical Therapy in Vascular EDS (vEDS) - Drs. Jane Simmonds and Siddarth Prakash
(The Ehlers-Danlos Society)
5. What is the link between joint hypermobility and anxiety? | Dr Jessica Eccles
6. how Ehlers-Danlos Syndrome (type 3) affects me 🌙🖤

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